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Without patients, carers, and volunteers, clinical research wouldn't be possible. We are very thankful for everyone who helps with our research and volunteers to join studies and clinical trials.

We put people at the heart of the research we do in our hospital. There are many opportunities for you to get involved in research. You can share your views, help plan future studies or take part in research trials as a participant.

Here, you can find more information about how you can take part in research at Royal Papworth Hospital.

If you would like to get involved in research in other ways, such as reading documents or giving feedback, please send a message to us at papworth.ppi@nhs.net. 

How can I take part in research at Royal Papworth Hospital?

You may be invited to join one of our research studies, either while you are waiting to come into the hospital, while you are in the hospital, or after you go home. If this happens, you will get full details about the study and have time to decide if you want to take part. There is no obligation to join and your treatment will not be affected in any way if you say ‘No’ or if you say ‘Yes’ but change your mind later and decide to withdraw.

We might need to look at your medical records for research. Before we do this, we would present a plan of investigation to the Research Ethics Committee for their approval.  This will make sure your personal information is kept private, and the research is done correctly and safely.

We always want to improve our people connections and engagement. If you are part of a community group or organisation that would like to work with us, please get in touch at papworth.ppi@nhs.net.

Why should I take part in research?
  • The NHS aims to give patients the best care possible, and research helps to decide which methods of care are best.
     
  • Clinical research depends on patients who take part and help make new discoveries.
     
  • The results of our research not only help Papworth Hospital, but they are also important for people across the country and even around the world. We share what we have learnt through meetings, conference presentations, and publications in medical and nursing journals. 
     

  • Many patients feel happy to take part in research because it’s a way to help the NHS and other people in the future.

What could I be asked to do?

Most research studies are designed so that patients only need to do one or two extra things, in addition with their usual treatment. For example, we might ask you to complete some questionnaires, to give a small sample of blood or tissue, or have an extra test.

If we need you to come back to Royal Papworth Hospital for any extra research visits, we will cover your travel costs.

If we need a sample of your blood or tissue for future research, we will ask you to sign a separate form to agree to this. Any information about you will be kept private and stored safely on a computer.

How will I understand what the research is all about and what it might mean for me?

A member of the research team will explain the study to you and give you a leaflet with more details. You can take time to think and talk about it with your family, friends, or GP if you want. The leaflet will also have the contact details of the research team, so you can ask questions anytime.

When you come back to the hospital, a member of the research team will be available to discuss the study and answer any questions you have.

If you decide to take part, you will need to sign a form (Consent Form) to agree. You can change your mind and withdraw your consent at any time without giving a reason, and this will not affect your treatment, now or in the future. 

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