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Without patients, carers and volunteers there would be no clinical research. We are grateful for everyone who supports our research and who volunteers to take part in studies and clinical trials.

We put people at the heart of the research that we do across our hospitals. We offer a range of opportunities for you to share your views, help shape future research trials or to take part in current research trials.

How can I get involved in research at Royal Papworth?

You may be asked to take part in one of our research studies, either while you are waiting to come into hospital, while you are in hospital or after you have returned home. If so, you will be given detailed information about the study and time to decide whether or not to take part. There is no obligation to do so and your treatment will not be affected in any way if you say ‘No’ or if you say ‘Yes’ but change your mind at some later date and withdraw.

We may need to access your medical records to carry out research. Before doing so, we would present a plan of investigation to the Research Ethics Committee for their approval so be assured that the research will be conducted to high standards, and that your personal details will be kept confidential.

We are always keen to improve our outreach and engagement efforts. If you are member of a community group or organisation that wants to work with us, please get in touch papworth.ppi@nhs.net

Why should I get involved in research?
  • The modern NHS aims to provide the best possible care for its patients and the only way to decide which methods of care are best, is through research.
  • Clinical research is entirely dependent on the assistance offered by patients.
  • The results of the research are not only used at Papworth. The specialist nature of our work means the results of our research are often of national and international significance and are made freely available through conference presentations and publications in medical and nursing journals.
  • Many patients are very pleased for the opportunity to give something back to the NHS.
What could I be asked to do?
  • Most research studies are designed so that patients are asked to do only one or two things in addition to having their routine treatment. For example we might ask you to fill out some questionnaires, provide a blood or tissue sample or have an additional test. 
  • If we ask you to return to Royal Papworth for any additional research visits we will pay your travel expenses.
  • If we need a sample of your blood or tissue for future research we will ask you to sign a separate form consenting to this. Any information about you will be held anonymously on a computer.
How will I understand what the research is all about and what it might mean for me?
  • A member of the research team will explain the study and give you a leaflet containing further details. You will be asked to take time to discuss it with your family, friends and GP if you so wish. The information sheet will have the contact details of the research team should you need further information or advice at any stage.
  • When you return to hospital a member of the research team will be available to discuss the study further and answer any questions.
  • If you are happy to participate you will be asked to sign a consent form. You can withdraw your consent at any time without giving a reason and this will not affect your treatment, either now or in the future.

 

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